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Then I had Brain Surgery

 "He . . . binds up their wounds." (Ps147:3) This is me coming home from the following adventure... Remember when I told you I was going to be able to delay the need to have brain surgery? Just kidding!  On Monday March 7th, I had a seizure at home which resulted in a fall.  That night, Kendra and I decided that it wasn't a good idea for her to have to manage this situation at home, wondering if I might have another seizure and / or fall, So she took me to the ER at UCLA, where I got a fresh MRI of my brain.   The MRI showed that two tumors which had received radiation a few weeks prior had grown in size (#notallowed).  This growth led the brain experts (is it just me or do others agree that “Brain Expert” would be a cool thing to have on a business card?) to conclude that the seizure had probably been caused by these enlarged tumors (also #notallowed).  Prior plans to put off surgery?  Cancelled.  These free loaders have been given enough ...

Nailed it!

"The journey on which you go is under the eye of the Lord.” (Judges 18:6)

Dear Family and Friends,

The first day of treatment went really well if I do say so myself.  Other than unexpectedly having to go through it without Kendra and George, no problems.

It was an 8-hour day with three different infusions and rest periods after each.  I was complimented on my veins at least 4 times, and I think I'm going to stop sharing that with you at this point because I don't want it to go to my head.  Pride in one's vasculature can be a gateway to many other sins, so I think I need to balance it out with some vascular humility and detachment.  I hope you understand.

I was able to work on emails, take calls, get up and walk around, and eat lunch while getting infused, and the clinical trial team brought me a really great lunch courtesy of the drug company sponsor of the trial.

The infusion center was very busy, with patients of all ages and backgrounds (all adults, so not all ages).  There were a lot of patients who looked much like you'd expect, having that "chemo patient" look about them.  Pray for them, team.  They're in a tougher place than I am.  Much tougher.  And they don't have all of you...yet.

The nurses were the best nurses who have ever taken care of me, Kendra, or one of our kids in any setting, for any reason we've needed care, ever.  Their cheerfulness was exactly what you'd want in a treatment ward that could be a very depressing place.  Their joy at helping and caring for patients is something I'll probably never forget.  As I mentioned in my post of Wednesday morning, I offered two of them to come and work for my company.  No response yet.  They really were excited to see George before they kicked him out, and it wasn't long before the 9 kids factor became clear.  They hungrily crowded around our pictures of the kids and had many compliments for Kendra especially.  They made us smile.  Please pray in thanksgiving for people who are wired to do this and for their perseverance in their vocation, despite the fact that they see such a repetitive cycle in so many patients.

The first two infusions were a complete piece of cake.  The third made me feel heavy-headed, if only very slightly, and if that even makes sense.  They gave me tylenol and benadryl, I slept for 20-30 minutes, and felt fine.

Kendra came back later to pick me up, though I felt that I could have driven home.  She brought Mary Jane, who needed to come in to go to the bathroom.  In the elevator, she announced to one of the oncology receptionists that our baby is George, which was great.

We stopped to check in with the Boss on the way home.
Stopping at a church on the way home is something I try to do every day.  Usually it's to unwind for a minute before I go home, because the family doesn't need COO Dad.  They need Dad, so I need to make a big shift in what I'm focused on.  A good friend once gave me the advice that when I touch the doorknob when I get home at the end of the day, I need to say to myself aloud, "It's showtime."  Because the family needs the best of me, not whatever is left over at the end of the day.  He told me to rest in heaven, not on the couch at the end of the day.  Get up and help with something, he said.  I try and fail to turn off wound-up COO Dad, but I'm still trying.  Anyway, stopping at a church on the way home is what makes it possible for me to make that switch.  Stallone had the hat in his serenade to arm wrestling "Over The Top," I have my daily check-in at the tabernacle.
Today's visit was more about thanking Him for watching over me, for the opportunity to live in this age where I could get a medical miracle, for the mysterious gift of this cross - shaped precisely to fit me, and for all of you.  This was a great day - a phenomenal day.

I came home to an end of the year school party for 60 teenagers.  You might have heard we keep it crazy around here.  I distinctly remember the first day of interferon in 2007.  Right after dinner I started feeling pretty awful.  Not so today.  Totally different.  I took a late work call about something big that's going on, and I watched the end of The Fugitive with the high schoolers.  That is a great Chicago movie.  So many touches, so many great local actors wit de yACcent, so many great mustaches.

Here as I approach midnight on day 1, I have an ever-so-faint, almost imperceptible headache and an ever-so-mild scratchy feeling in the back of my throat.  Probably just time to get some rest.  COO Dad's got some big things to accomplish tomorrow.

With fortitude and prayers for you,

Jim

Comments

  1. Remembering those you meet alongside this battle in our prayers. You are right. Often I think how blessed I am to be surrounded by the faithful you know are praying for you.

    Love the advice of your friend regarding turning the thought from work to home. I'll have to share this with the husband, who is now back to work after almost 3 yrs out on injury.

    God bless you Jim!

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    1. Thank you! Please read this with the spirit of charity I intend - might I recommend letting me tell your husband :-) ? Maybe just encourage him to read the blog? I'm sure this isn't the case with your husband, but speaking for myself I know I can get defensive when those who are close to me tell me I need to fix myself.

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    2. Oh totally. 😊 This actually hit a current discussion we've had leading up to his return to work. All positive though. Sorry I didnt mean to suggest something else about him. He is going to crack up when he reads this; he's already reading the blog. Afterwards he may just give me the 'look'.😃😶

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    3. Okay, perfect! I don't want to start any disagreements!

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  2. I get so much out of every post! I won’t comment after each one, but know I am reading them all and praying for you!!! What kind of company do you work for? You and Kendra are a perfect match with your incredible writing, humor, and faith. Once y’all retire, you will definitely have to write some books together...or speak at Catholic conferences together! May God sustain you every step of the way. That was always my prayer for myself when I was going through tough times health wise...just that He would sustain me when I was scared, or in pain...or tired of suffering...or wanting to give in to despair...or frustrated with His Will and how I saw it getting in the way of my vocations...and affecting my family....anyway, sending prayers from North Carolina...you are amazing!!! Thanks for helping so many of us to grow closer to our Lord through your cross. Thank you for sharing this journey with us. You will never know this side of heaven all of the fruit that will come from it!

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    1. Thank you for your kind words. My company owns and operates urgent care centers. Prayers that your health holds strong.

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  3. Keeping you and your beautiful, inspiring family in my prayers. I lost my mother to an aggressive terminal cancer a month ago today. She was 95 years old and a woman of great faith. I'd given one of Kendra's calendar's as a New Year's gift, but will treasure it now myself. I, too, am so thankful the gifted and devoted nurses, doctors, and hospice workers who made her last weeks comfortable and filled with dignity. God bless them and all their patients. Thank you for sharing your story.

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  4. Thank you for sharing your cross with such joy. Your writing inspires.

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  5. It is so wonderful that you have been able to get treatment so soon! Oncology nurses are some of the best human beings on the planet. I will be praying that the side effects of the treatments won't hit you too hard. My husband tries to stop at a church or adoration before coming home from work too, if he can't get there he does his prayers in the car. A friend gave him that advice before we got married. Love the reference to Over the Top! I loved that movie as a kid :)

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